Director, Strategic Alliances and Advocacy at Ultragenyx in

Why Join Us? Be a hero for our rare disease patients At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them. Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work. If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultraimpact – Make a difference for those who need it most

Reporting to Vice President, Patient Advocacy, the Director, Strategic Alliances & Advocacy, will be responsible for building strategic alliances and advocacy campaigns and initiatives to support US policy, regulatory, commercial, and R&D priorities of Ultragenyx as part of Corporate Affairs. The incumbent will also lead Patient Advocacy material development, including the advocacy website, newsletter, and corporate materials. Finally, the incumbent will be responsible for patient advocacy engagement and strategy for 1-2 Programs in early-stage development. The Director will collaborate with a number of internal stakeholders including Corporate Communications, Policy & Government Affairs, the Program Teams, Legal / Compliance / Regulatory, Medical Affairs, Clinical Operations & Development, and Commercial / Brand Strategy. The Director should be located in the Boston or Washington, DC areas with the expectation to be in the Somerville, MA office on a regular basis.

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

Develop strategic alliances in coordination with US Policy & Government Affairs and other internal teams to support public affairs strategies aligned with business objectives
Recruit and cultivate a well-developed network in the rare and ultrarare community that provides access to key stakeholders, critical intelligence, and ability to address future policy and regulatory challenges
Engage and educate advocacy leaders as well as rare and ultra-rare grass-tops leaders on Ultragenyx policy and regulatory priorities
Represent Ultragenyx at key alliance engagements and stakeholder meetings in Washington, DC and across US as necessary
Lead development and management of Patient Advocacy assets, including newsletter, recruitment campaigns, website, community letters, corporate brochures and materials, internal / external patient storytelling, and partnership opportunities
Support the Corporate Communications plan by elevating engagement with advocacy organizations across multiple channels and ensuring tight alignment / awareness of Patient Advocacy calendar with internal teams
Develop innovate ways of engaging patient and external stakeholder communities across platforms, including through activation and grass-tops campaigns
Develop and execute global patient advocacy strategy across different stages of asset development in key markets for Ultragenyx
Build trustful relationships with patient advocacy groups and community leaders to ensure productive partnerships and alliance
Build and maintain Patient Advocacy annual plan for specific programs and budget in alignment with cross-functional colleagues

Requirements:

8+years of industry experience and 5+ years of external engagement experience
Excellent communications skills (including written and oral) and strong interpersonal skills that can build and progress relationships internally as well as externally
Demonstrated experience building communications materials and ensuring appropriate Legal, Compliance, and Regulatory reviews
Experience developing and managing annualized patient advocacy plans and budgets
Solid understanding of drug development, regulatory, and commercial processes at a global level
Experience developing and executing alliance and public affairs campaigns supportive of corporate objectives
Experience building corporate / advocacy materials and taking them through appropriate review processes
Ability to work in a fast-paced environment, prioritize tasks, and successfully management multiple projects in a matrixed organization
Experience in rare disease preferred
Bachelor’s degree required
Boston or Washington, DC – based #LI-CS1 #LI-Remote

The typical annual salary range for this full-time position is listed below. This range reflects the characteristics of the job, such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicant's geographic location.

This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment.

Pay Range$202,400—$250,000 USD Full Time employees across the globe enjoy a range of benefits, including, but not limited to: · Generous vacation time and public holidays observed by the company · Volunteer days · Long term incentive and Employee stock purchase plans or equivalent offerings · Employee wellbeing benefits · Fitness reimbursement · Tuition sponsoring · Professional development plans * Benefits vary by region and country

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at talentacquisition@ultragenyx.com.

See our CCPA Employee and Applicant Privacy Notice. See our Privacy Policy. Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation. Inquiries on developing a recruiting relationship with us, may be directed to: talentacquisition@ultragenyx.com.